Along with all this Brody has started having fevers... High fevers... Makes him so lethargic.. Then the Tylenol kicks in and he's better until it wears off. So far all cultures are negative... They are assuming it's his gallbladder that's causing fevers. Hopefully after surgery Tuesday he will be on the up and up. Bedsides all the awful here... There is good! We're on the step down unit and not in the ICU!! Brody did a victory lap in the ICU thanksgiving night... He was giving high fives and the Dr's we're hugging us saying how awesome he looks!! The same Dr. That told me to plan for the worst and hope for the best was on that night and in awwww of B!! Was a great feeling!!! For all of us:)
We spend a lot of time playing in the playroom.. Walking the 6th floor and playing hockey and of course riding in a monster truck!
Brody's vocabulary has really improved the last two weeks. Stressful situations I think increase his need to communicate:) we of course are constantly trying to reason with him... But he's 2... They don't reason... And what two year old vocab should include IV fluids... Picc... abd blood work. NO is still his favorite word! We're keeping him busy and trying our best to keep him happy. Hospital life is somewhat of a norm for Brody so he's ok:) Its cold and gloomy here... We can't wait to get back to AZ! Can't wait to get back to our girl! She's having fun with family and with friends.. But still miss her
Hoping for some easier days for this strong little boy!! His heart is looking great and we have actually took away some meds and went down on his heart meds! CHOP is so amazing... As much as we don't want to be in the hospital I'm so thankful we are able to get Brody the best care possible. We met a family last night from Moscow.. People come from all over the world because of CHOP! That's why we're here!!!