This has been a long stressful week! I've never had a week go slower... We started a very slow wean of his heart meds Monday. We went from 1 to .8 the next day to .6... then 0.4.... Then .2! Each day watching for signs of heart failure... Vomiting, crankiness, swelling, tiredness... Everything that Brody has already experienced! Each day was long and to say it made me nervous would be an understatement! Here we are, it's finally Friday!!!! We are turning off the milirinone... MiliriNOnE!!! We're not attached to a pole!!!!
In the mist of a very important week... We lost IV acess ( again) and Brody had to go to Interventional Radiology ( again) to have his PICC rewired! It was dislodged and later found to have a crack in the tubing... So he went on another round of high dose prophalactic antibiotics to be careful no infections entered his blood stream! He will need his PICC until we are discharged... So it has a NO NO on it. Protects his line but limits his mobility. We can deal with that!
The next week we are just going to see how Brody does with the meds off, then his team will wean the diuretics and transfer to oral,to see if his heart can handle the fluid without the IV diuretics , we are headed in the right direction... We are just so happy to see our little man happy again! The non stop Ohhh Noo and uhhhh ohhhhh and biting is back! Never thought I would be so happy to have my boy bite me!! He's his spicy little self and it's just so wonderful to be around! We are so blessed.
During the day we were granted special privileges to leave the floor. We go right outside the main entrance and watch traffic. Who knew city life could be so interesting!
He even gets to see the helicopters land and take off... The sirens, cars, garbage trucks and the bustle of the city is entertainment enough! The birds come right up and pick up his crumbs... He loves it... Were eating it up to!
Brody is doing great! Thank you to all of our prayer warriors!! It's working !! God is Good! Kiss the ones you love!❤️❤️❤️
Oh! Thank God! <3
ReplyDeleteI've been waiting to see that smile again. Love it!! <3
ReplyDeleteI've been following Brody's progress through your blog and I will pray that everything continues to advance successfully! I love the pictures in this post, sometimes pictures of him are hard to handle, I can't imagine what you go through on a daily basis. Is he able to eat now without getting sick?
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