Team Brody

Ok!!! Well we almost made it to one month being home.... Our longest stay at home yet! But our little man had to be readmitted for a blood clot in his leg. I had been watching it for a while and it was just not improving... His right leg was twice the size of his left and was a grayish color. We kept calling the doc and they just kept telling us to watch it... Well we were and it didn't get any better:( I even took him to the pediatrician and she said she wasn't worried about it! I was!! And good thing... Complete venous thrombosis ( fancy word for blood clot in him femoral vein) his body formed collaterals ( small tiny veins that grew because of the clot) these collaterals are basically what saved his leg! So very important to get the clot dissolved... So now our amazing little guy has to get two shots twice a day for 12 weeks:( Makes my heart hurt every time I do it.. He cries for a second then he's over it... But still No fun for a mamma to do to her sweet boy. They are called lovenox injections and it dissolves exsiting clots and prevents others from forming. We are off the low fat formula that was helping his lymphatic system heal, and all I can say is thank goodness because we are all sick of cleaning up throw up!! That formula was nasty and getting him to even attempt the bottle with that was impossible! I'm sure you have all seen that Brody still has his feeding tube inn... We went to see and ENT specialist because B was not taking the bottle, turns out one of his vocal cords were damaged/paralyzed making it impossible for him to swallow... We're hoping he recuperates and the other vocal cord compensates for the paralyzed one. Vocal cords can be damaged from intubations ( where they put the breathing tube down and put him on the ventilator) he was intubated 3x after the Glenn surgery so that is when it most likely happened. We are fighting with our little guy every step of the way! He actually took half an ounce this evening and I almost cried! If he doesn't learn to take the bottle soon he will have to get another surgery for a G tube... The feeding tube can't stay in long term because it ends up eroding his nose and throat. Taking a bottle is a huge deal.... One less surgery for our sweet boy! We did go out to eat ... Another big deal, Small things mean huge accomplishments for us! Life for our family will forever be changed by this amazing little boy! We are so lucky to have him and each day we cherish every moment and every smile! Don't forget to join Team Brody and help fight Congenital heart disease Nov 4th!!! I posted the link to join the team on Facebook! One week left to make your order for your team Brody shirts!! Just send me a message on Facebook! Love to all!!!