Click click click

We are now in the step down unit!! A whole new team is refreshing! Brody is doing amazing! We are still trying to get some blood levels to a therapeutic range and watching his kidney function. His mechanical valve likes thin blood so we are dosing Brody with Coumadin and trying to find the right dose to get his blood to a therapeutic level. Our boy is fragile... I don't know how to raise a boy on Coumadin.... Help me!! His pain medication dilaudid is being weaned this week and hopefully we will be off narcotics the beginning of next week. Tomorrow B will have an ECHO to check his function of his heart... Off milirinone for almost a week! Hoping he shows them whose boss tomorrow! He now takes all his meds by mouth...  He takes 7 different meds 3x daily... He's a champ

The team said they are shooting to have us home by beginning of September if all continues to go well! They will handoff to our cardiologist Dr. Lindblade in Phoenix and when they clear us we will be on a plane WITH our boy back to Arizona!! Back to our girl!

Back to our family! We are thrilled and counting the days!

Each day really is a gift! I was laying in bed with Brody last night and I could hear... Click... Click... Click... It was very quiet.. It was the middle of the night.. Brody was in dream land.. The noise I could hear was his heart! The noise was a very soft precise click, click, click... I could hear his new mechanical tricuspid valve! I could not believe that was what I was hearing... He was laying there just perfect.. Looking like an angel... Looking like he didn't just have two open heart surgeries.. It was a very surreal moment! I took a deep breath and just asked God to please watch over our boy! He's our bionic boy! He is doing so well and I know it's because he's strong... He has a purpose here.. And we are going to make sure we give him the best shot possible!!

He is so blessed to have so many people praying for him.. God hears every single prayer and he is answering loud and clear! 

Brody is a blessed child and I know he has touched many hearts! I hope the message he can deliver is that life is precious! Live each day to the fullest... Don't worry about the little things... Those things will all work themselves out! Brody is  a miracle and doing so well because of his medical team... His family.. His friends.. But mostly because of LOVE! Love makes everything better! Love makes life great! Without love.... You have nothing! We held onto love...and it worked!  We don't know what the future holds for Brody... But we don't know what the future holds for each of us either, we can't live in fear... We can only live in love! Love each other! Love each other every single day! Tomorrow is never promised. God is good! Kiss the ones you love!