Monday, August 18, 2014

Trying to BUST out!!

Whewww!! We are so ready to get out of the hospital!!! We have had a pretty good week...including pet therapy!
Few small things... Like withdrawls and temper tantrums and blood draws but nothing we can't handle! Ithink we can handle quite a bit now! We are still needing to have an echo done so we can have a baseline for heart function. We tried a few days ago but Brody didn't cooperate so it was not successful. We are going to try again today with some oral medication to help calm him down!
He is to say the least done!! Done with people... Nurses... Doctors... Physical therapists... Occupational therapists... Just done!! He falls asleep and  when he wakes be it in the middle of the day or middle of the night he losses his cool! A tantrum I have never seen...  He is so upset when he wakes up... It's like he's like really??? I'm still here??? I swear he wakes up the entire 6th floor with his blood curdling screams!! Usually the only way to calm him is to leave the room... So that's what we do!! We  go outside! Or just out of the room to calm him.
Other than torturing him with blood draws and small things like echo's and X-rays we are doing wonderful! Our sanity will be even better once we can leave here! Our boy keeps us busy and we are more than delighted to take care of him... Even if we still are inpatient! His chest is healing up beautifully!! Took some time... But good things come to those who wait!
Please continue to pray for our boy...the love and prayers everyone sends are working!!! 2 weeks ago Brody could barly stand... He is walking and just amazing his team as usual! Power of Prayer!
Today is a good day! Tomorrow will be better!! Love each other... Kiss the ones you love! God is good! Hopefully my next update will be outside of the CHOP walls!!!
Its not Frost from San Tan mall but this gelato put a smile on his face!!! That's all that matters!!❤️❤️❤️❤️

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