Baby B is smiling!

Okay...we are home:-) Baby B was started on heart medication Clonidine which is working perfectly at the moment. It is a day to day or  should I say hour to hour process with our little man:-)  He is doing well, gaining grams every day...every little bit counts with Brody! He is weighed everyday at the same time....and every day I hold my breath hoping he gains:-) Remember all we want him to do at this point is to get bigger so gaining weight is exactly what I want...and what his Cardiolgy team wants as well! The bigger the better...that way we can get his Glenn surgery done and out of the way! Once the Glenn is done, supposedly life is a bit more normal...no more seclusion from the rest of the world....and his status should not be so critical.  According to all my research and all my "heart mamam's " out there life somewhat returns to normal:-) Looking foward to that!!! Brody is only 6 weeks old ( almost 7) but it feels like I have had him alot longer than that!!!  He is a very very scheduled baby...he eats every 3 hours around the clock....he has a bath and gets weiged every day at 10:00 am....his meds are 3 times a day...and then we start all over again! SOOOOOO I am looking foward to the somewhat normal part after the Glenn.  Hoping he won't need the NG tube ( little tube in his nose) after the second surgery.  He has managed to pull it out a few times along with Dad and I pulling it out as well on accident. Yesterday he pulled it out and I left it out all day, and he took all his feeds by mouth, which is a great thing, I put the NG in late last night so I could feed him while he slept...he needs those calories at night to add some grams to the scale in the morning!  My wonderful mother Diana has come to stay with me and all I can say is that it is so nice when she is here.!!! nice to have an extra set of hands to help...I have trained her on all his meds and his feeding pump and all the other little details that you must know about if you are going to take care of Baby B!!!!!  Since she has learned everything and I am confindent in her ability I have been able to venture out for an hour here and there...not very long...but just leaving the house helps with my sanity!  Baby B still loves his mama and when he gets upset sometimes that is all he wants...were not suppose to let him cry or be upset for too long so that is alwasy on my mind when I leave.  My mom does a fabolous job and she knows how to calm him, but still I only leave for a bit then I hurry home to baby B!  Big sister Charli has really amazed me at how much of a helper she can really be! You wouln't think a 5 year old could be such a big help but SHE IS!! she is my little runner...she runs and gets me my phone, diapers, bottles and even holds the baby and gives him is chuppa ( pacifier)  if he gets upset. I just stand back and let her do her thing if he isn't upset, she is so proud of her brother, and this mama is proud of her!!! Again thank you to all my friends and family  that have come to see us....it is refreshing to have good people in my life   that come and take my  mind off of everything that stresses me out...even if it is just for a few hours or a night!   Seth is on the road working....his business is up and running and he is a busy man! At the moment he is in Tahoe and California working, I know it is hard on him as well to be away from us, but that's life, and I know he is thankful to have the work !Please continue to pray for Brody...everyday he is here is a miracle in itself!! Love to all!!!!!