Big boy!

Big Boy!!! Brody has been doing wonderful!! His surgeon Dr. Spray  returned today from being out of the country for the past two weeks...he was pleased with Brody. It's a hard reality to live in the heart world... Dr. Spray said his ventricle is still "stiff".. But we just need to wait and see... See how he does off the millirone next week, then wait and just see what Brody does! Dr. Spray thinks his function will improve over time, time will tell. I hate time.

Brody is a very special baby, there are thousands and thousands of HLHS babies, but very very few HLHS ( hypoplastic left heart syndrome) babies with a mechanical tricuspid valve. His surgeon can only say time. Brody will let us know! He is letting us know! He looks wonderful, he's eating and being the spunky little man we know.  His chest was closed yesterday, finally!! Brody hasn't had a chance to just recoperate, there is always something that sets him back! Hoping today was the last big thing for a while! They had to close his chest In three different layers, so he has a drain in place ( Seth calls it the grenade) to drain excess fluid from all the tissue layers. He is very sore, still on morphine around the clock but that should be done in another week! Then just Tylenol! Today he had to go to Radiology to have his PICC( line in his right arm) rewired. He did great, woke up and was ready to eat! Even if did fall asleep eating...

Today was a good day! Tomorrow will be even better! Charli has convinced us we need a dog... So when we get home we will be adding a dog to this crazy mix! Kiss the ones you love! Tomorrow is never promised.