Today is July 17th... Brody's first surgery was June 17th... One month later... 5 weeks later.. A million hours later... However you look at it were doing better!!! His chest X-ray is starting to finally look normal...
The last few days have been very busy. His chest/lungs were not looking well and we were discussing another chest tube, but right now we are GOOD!! Hoping the fluid stays off... Basically a waiting game to see what happens. His lungs have been put thru quite a test... With this new Fontan circulation and the mechanical valve his lungs are needing extra extra time to recuperate. We are in the process of transitioning all his IV drips to oral medications. The problem is his liver is still very enlarged ( due to his new Fontan circulation) so he is unable to keep anything down. His liver is taking up too much space in his abdomen so He has a ND (into duodenum, part of stomach) tube in place that goes directly to his intestines, so he is on full feeds via the tube. He vomits multiple times a day.. Occasionally he will vomit the tube and another one will have to be put down. Calories make a huge difference in recovery, along with physical therapy. PT has been working on Getting Brody rehabilitated, he can sit but is unable to stand or walk. The doctors say we are chipping away... Piece by piece little changes...
Brody is starting to communicate with us.. He says his favorite word NO... No..NO all day. Poor baby is sick of people always messing with him. He is a trooper, we explain what they have to do and most of the time he allows it... Many times he does NOT! Brody is a warrior! He is strong and is not giving up... He amazes us everyday!! Kiss the ones you love!!!
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