Big strides!

Ok!! Mr. B is still fighting infection but going in the right direction:) His team seems happy with his progress. His lungs finally showed some improvement today...chest tube is still in place and draining. Will not remove until drainage slows down. His heart rate is still elevated but they are attributing it to his fevers and also to weening of fentanyl... They weene very slow but the slightest change makes a huge difference to Brody. Being able to get his sedation down will help everything.. Just a very slow process. Today Physical therapy came by and Brody sat up by himself... He has been supine for 22 days so his muscles and body are weak... Sitting up is a huge stride for him... They will now come daily and work with him. Perhaps tomorrow they will place him on a mat and see if he is able to tolerate sitting up by himself... Today he sat up but with a little help from Seth!! Big Big strides in the ICU world! They turned of his LASIK ( meds that help get rid of excess fluid)  to see if he can regulate on his own. They also turned off his dopamine ( again this is huge) to see if his heart will tolerate.. So far so good! It's only 11am here so we will see what the rest of the day entails. Last night he received his first oral dose of Coumadin ( blood thinner) for his new mechanical tricuspid valve... Getting his INR into the  right range they want is tricky... They have to find a dose that works but doing so is a fine balance. Once we find a good level we will be able to weene heprin and just be on Coumadin ( this will be life long for Brody).

Brody is showing us how strong he really is! Children are so resilient... Brody is to say the least amazing... And our miracle! We are so blessed to have him! Kiss the ones you love!! Today was a good day! Tomorrow will be even better!!!!