Wednesday, May 30, 2012

WOW!!!!

OKAY!!! It has been a few days since I have updated everyone!! But no news is good news right now:-) Uneventful=EVENTUFULL for BRODY!!!  Our Boy is doing fantastic...as Dr. Nigro would say ! He is off his fentanyl, his precedex, and they are turning off the milirione today so lets pray he does well. He has an ng tube and is receiving milk through it, he is up to 15ml an hour;) He will most likely go home with his ng tube and maybe some oxygen as well... But thats it! They came inn today and actually started talking about going home! He will be on what they call an interstage program... basically its a program where he is closly monitored everday until the next surgery (the Glenn). He will be weighed everyday, have a pulse ox on every day and all his numbers will be relayed to his cardiologist team so they can monitor him like a Hawk!!!  We will have to stay with him and do all his care for 48 hours before they discharge him. Were surprised that they are talking about home already!! Now were thinking of everything we have to do before he comes home!!! It's very exciting and scary at the same time! All the care that we are receiving here at Phoenix Children's is amazing ! Again please anytime you see PCH asking for donations give whatever you can... Even if it's just a dollar... Every dollar counts:) Our Baby boy is here and alive because of them!!! Please keep all the little heart warriors out there in your prayers... These babies go through much more than any of us will ever know or experience in our lives... They truly are amazing! Our Brody amazes us everyday and we are so excited to bring him home to big sister Charli!!!

2 comments:

  1. Thank You again for the update's, I really appreciate You doing that. So happy to hear Brody is coming along, thats great. I love the pictures, they are priceless, You can see in Charli's eyes, how much she loves her little brother, thats wonderful. She will be a really good big sister. Love to all.....

    ReplyDelete
  2. Brody looks amazing, as well as darling Charlie! I keep checking and no new posts- hope all is going well... Many hugs for all- you are SOOO.... Loved!

    ReplyDelete